The National Organization for Rare Disorders is holding the Living Rare, Living Stronger Patient and Family Forum in Cleveland Ohio on May 14th-16th. This is an event forum for Drs, Medical professionals, wellness warriors, advocates, family members, friends or individuals with rare disorders to come together to share, grow and connect.
Currently they are taking submissions to nominate individuals making a difference in the rare disorder community. The deadline is January 2nd, which is just a few days away.
I’m sharing this information because this is such a unique opportunity for us to put a spot light on communities, organizations, companies or individuals making a difference in the world for Spoonies everywhere. It might be you or someone in your community - whomever they are, let’s all come together and nominate those amazing individuals doing something for our rare disorder friends.
I’ve nominated a very special individual whom I think is making a major positive impact on the lives of chronic illness warriors and hope that you can nominate other individuals like them as well.
Let’s come together and lift up our community!
I was VERY low cortisol while making this, so please forgive any information that is incorrect - and all the pauses due to brain fog and pain.
I am not a medical professional, just a wellness warrior sharing my own personal experience in hopes that it supports another spoonie on their journey.
Light, love and all the spoons
❤️🙏🥄
Vanessa
Nominate outstanding Rare Disorder Advocates here:
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